The Epilepsy Foundation Wellness Institute aims to improve the well-being and quality of life for people living with epilepsy and those who care for them. It supports an integral part of epilepsy self-management strategies consisting of non-medical approaches and behaviors that a person with epilepsy can use to promote seizure control and emotional health and enhance their overall life success. The Wellness Institute emphasizes a holistic and strengths-based approach that includes the eight identified dimensions of wellness: emotional health, sleep, independent living, physical activity, education and employment, social relationships, stress management, and diet and nutrition.
A critical part of supporting epilepsy self-management is connecting people for peer support and sharing lived experiences, promoting wellness information, and facilitating patient empowerment and activation. Helping people navigate information and tools on epilepsy.com offers personalized approaches to self-management and activation. The Epilepsy Foundation offers these opportunities through local offices, our online community on epilepsy.com, social media channels, and through the Epilepsy 24/7 HelpLine.
The Wellness Institute Community Manager will provide support and accurate information to the Epilepsy Foundation communities through epilepsy.com online forums, and local offices as needed through mentoring, personalized navigation and short-term case management. The Community Manager will assist in the development and dissemination of emotional health activities of Wellness Institute throughout the network; and assist other staff and local organizations to respond to callers in distress with immediate and follow-up services. This position will develop and coordinate the Foundation’s national volunteer peer support network to support emotional health and wellness for people with epilepsy and their families.
Essential Duties and Responsibilities
Work with the Health Information and Resources, and Digital Services to oversee the epilepsy.com online communities.
Liaison with and provide support to volunteer online mentors.
Respond on a consistent basis to community posts with appropriate information, resources and support.
Works closely with the Information and Referral (IR) Department to respond in a timely and appropriate manner to inquiries (via email, phone, website, social media, among others) from those who exhibit mental health distress, particularly depression and anxiety concerns.
Provides navigation and short-term case management support to people identified through the IR or web departments, who are experiencing emotional distress, or problems managing complex health needs.
Assists in providing training to national and local staff on strategies to support wellness and emotional health for people with epilepsy and caregivers.
Communicates information on epilepsy self-management, wellness, and community resources in a compassionate and understanding manner.
Assists in development of best practices for volunteer peer network that can assist people nationally and via local offices. Provides ongoing support to the volunteer peer support initiative with data collection, evaluation and support; and write reports related to program activities.
Collaborates with the Health Resource Specialist to gather resources to support emotional health and reach rural and underserved communities.
Assists in development and review of content for epilepsy.com and Foundation programs concerning the dimensions of wellness.
Maintains a record of all public inquiries using the iCarol database. Compiles monthly statistics and other data for dissemination and/or reports.
Assists with other duties as needed/assigned, such as attending the Epilepsy Foundation’s National Walk and Skill Building Institute, representing the organization at community events, and health fairs or similar events.
Maintains appropriate professional and ethical boundaries.
Other duties as assigned by supervisor.
Education and Experience
Bachelors degree in Nursing, Social Work, Counseling or related field required. A Masters degree and experience with epilepsy, or other neurological disorder preferred.
Experience using online health forums and writing for consumer/family groups.
Experience working with people seeking information or referral services and crisis response.
Experience providing support and education to people with emotional health and complex health needs and to diverse populations preferred.
Experience in customer service or call center environment helpful, but not required.
Five-years’ experience managing national programs in a not for profit service-based organization(s), developing program reports, providing technical assistants to constituents.
Knowledge of mental health issues, especially depression and anxiety, and chronic disability preferred. Knowledge of epilepsy and seizures, disability self-management and wellness are preferred.
Competence working with organizational databases and proficiency with data input.
Specific Knowledge, Skills and Abilities
Ability to work with clients in distress and maintain a calm, compassionate and helpful manner that is responsive to their needs. Excellent communication skills and the ability to listen with empathy and share technical information with accuracy. Ability to communicate effectively both orally and in writing.
Knowledge of or ability to learn about epilepsy and seizures, mental health needs of persons with epilepsy, wellness, self-management, and disability issues in general.
Ability to provide teaching and support using online forums; knowledge of digital resources.
Knowledge of peer support education and training models and programs for all ages, including their design and development, implementation and evaluation.
Ability to handle multiple tasks simultaneously and prioritize work. Strong administrative and organizational skills with great attention to detail.
Ability to understand, follow and receive oral, online and written instructions and feedback.
Personal skills that include strong initiative, ability to work independently with minimal supervision, and capacity to work well with others.
Knowledge of cultural competence and ability to work with diverse groups of people.
Interested candidates should submit a cover letter, a resume (or CV) in Word format and provide a writing sample.
For more information about what we do, visit the Epilepsy Foundation at www.epilepsy.com.
About Epilepsy Foundation
The Epilepsy Foundation of America is a national advocacy organization leading the fight since 1968 to overcome the challenges of living with epilepsy, and to accelerate research to stop seizures, find cures and save lives. The Foundation has more than 50 local offices carrying out its core programs of education, information, community services & supports, advocacy and research nationwide.